Skip to main content

Be Your Own EMT, Or At The Least, A Cowboy.

Somedays, you have to take the bull by the horns. (Or cat..by the tail?)



Give it a good shake, maybe lay it down in the grass and brand it with whatever sign means courage to you. Something that burns, stings, and fries all that junk clogging up the pathways in your brain and heart. It's about taking that final plunge, everyday, over and over, especially when it doesn't get easier with frequency.


And then somedays it's about letting all the worry, anxiety, fear, and just plain ole tiredness be what it is, but gently, every lightly, rising above it.

Sometimes it takes violence and sometimes, just a gentle bump, to get all that stuff away.

Which approach on which day? How can I discern what needs to be done, and how?


You gotta be your own EMT. You have to triage your heart; your brain, and probably your soul too. Because if you don't who will? Who is better equipped with the inner workings of yourself then you?

 And then when you get down to the inner work, you see that it's hard. Its discouraging, and it needs finesse. What to do? The only thing left to do.


You have to just ride through it.




It's a lot to ask! But in end, you will be free. 




We've been seeing a lot of these days lately here at Camp Leo. Days that really try your mettle. It's hard, but ever hoping, ever prayerful for peace, we keep going. Staying in the saddle is a challenge, but the rushing air flowing past, seeing those little faces day in and out, is the fuel for our souls. Leo is two, terrifically terrible, normal, and full of his own kind of gumption. No seizures, though everyday the fear is there, like a storm off in the horizon. I pray it will never come, and if it does, that we will have safe shelter. And I know that we will. 








Comments

  1. You are a wonderful mom. Leo is so blessed to have you. You CAN do this. Keep up the good work. Take a moment for yourself. Let our Holy Theotokos carry Leo for a while - for your respite.

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

The Heart Knows

Today during the physical therapist's visit, Leo was put through his paces. She had a whole list of things, 40 to be exact, of regular newborn motor reflexes and characteristics. Each one gets a check-mark (or not) and then a total score once she tallies up all the information that she observed. Although the final score for Leo really itself doesn't matter, the test was more to establish a baseline of development for Leo, and to find his strengths and weaknesses. Once this baseline is established, it will be easier to tell any progression and growth. Just since her last visit, she observed that Leo was doing a much better job of keeping his head in mid-line position. Before he would always keep it on one side or the other. She also determined during the exam that Leo definitely tracked her with his eyes and responded to sound. More specifically, to my voice. She had him on his tummy facing away from us, and she shook a rattle and made some noise to see if he would move his head...

Shunts Away!

Here is just a quick update for all those waiting and praying for our Leo, before we go collapse in bed for the night. Leo was prepped and ready for surgery early this morning, but they only took him around two in the afternoon. We were there with him for most of the day today, just waiting and biting our nails. The anesthesiologist, a very nice British guy, came up around lunch to talk to us about the risks etc in Leo's case. Apparently because of his tucked up little chin, the regular breathing tube could not be used without lots of maneuvering and fiber optic tools. The anesthesiologist decided to use another breathing aid that isn't normally used for babies; a little tube that only goes down into his larynx, and does not do much more then blow some air down. Most of the breathing support would have to come from Leo himself. Typically under anesthesia babies need help to breathe, so the anesthesia team takes over the breathing. However the side effect of that is the newborns...