Leo Clement

So sorry about the lack of posts these past few weeks, we have been in a holding pattern, waiting to know more about what lies ahead for our little lion man. Last Friday (Which was also Great and Holy Friday for us complete with two church services)  Leo had another MRI and CAT scan to get more info for the surgery. Leo did great with the sedation and is back to his happy, goofy self and was very patient and amiable during the many services and goings on of our Orthodox Easter.  This morning we had the surgery consul with the main surgeons: Leo's neurosurgeon who we love lots and who has done his past two shunt surgeries, and the pedi plastic surgeon who we hadn't met before, but who really made a good impression on us. He seemed really honest and compassionate, and the very first words he said were, "Wow you guys really have a miracle baby here!" We are so lucky to have such great docs available to us. Although it seems that Leo man is kinda of a celebrity there an...

As normal does! Sometimes Justin and I  look at each other and wonder, how in the world did we get here? How did we get to this point, where we take a life of "special needs" as a given? Then there are those days that we don't, and we just sit and wonder at the strangeness of it all. It really is a poignant reminder to us, that when you hit the bottom of the barrel, every little inch towards the surface is a gift. We had a hearing test for Leo yesterday, and though the test itself was inconclusive (no surprise!) the ENT doctor was especially compassionate, maybe because she had just given birth to a little girl with DS. Instant friendship and understanding. I was blatantly reminded of these two worlds, which though are in cohabitation, are very different from one another. When I was a parent of a perfectly normal little girl, I never knew about this other world, about the rejection and constant heartache that those parents face. Never knew about the instant bonds that ca...