Leo Clement

This winter so far has not been gentle for the Lion Cub,  and here it is almost February, which means he has been slogging through turbulent conditions now for three months without any signs of clearing or peace.  It's probably redundant of me at this point to say it's been hard.  To recap what's been going on, or more precisely, what's not been going on... What's not been going on is even a week without killer migraine (we are calling them that for lack of a better word) episodes.  What's not been happening is any insight medically from his docs as to what these episodes are and why they are happening so frequently, or what we can do to treat or stop them. And all the other stuff that has been happening, is also in the negative realm. I see a developing trend here... The boy hasn't gone a full week at school since before Christmas break. I love being at home with him, but sometimes I need to go to work! Not to mention the strain of trying

Leo baby's first Christmas I found this interesting article a couple months ago, it was actually a series of several presentations about epilepsy and how to live with it, either as the sufferer or the parent of one. Each chapter deals with a specific aspect of epilepsy; the diagnosis, treatment, and the day to day physical and often emotional battles of this disorder. Here is a paragraph from the text that I just couldn't get out of my head: "So why is epilepsy so devastating? For most parents it is not the physical challenges of epilepsy that are the problem – it is the emotional challenges. Seizures last minutes or less, but worry about the next seizure can last a lifetime. For most parents and older children, it is the daily, unrelenting worry about the next seizure and its imagined consequences that makes epilepsy so difficult. Epilepsy is not so much a physical disorder as it is a disorder of anticipation." A disorder of anticipation . Hmmmm.