Skip to main content

Mad Skillz

If there is a will...
Leo will find the way!

Every week, every day, and every hour, his brain is learning, growing and developing. So is his body. It's so awesome to watch. Recent skills of his include totally mastering sitting. He sits independently and is able to rotate his torso all over the place and keep his balance. Today at church the real test came when his loving sister dropped a pillow on his head and he didn't move a muscle, other then those he uses to laugh hysterically with, that is.
Yeah, he's a tough dude, and on top of that he is into slapstick humor big time. Can't wait to watch my favorite Chaplin films with him!
Other nifty things he has learned lately is to throw stuff, dump stuff out, and roll stuff across the floor. And all the stuff eventually ends up doing time in Leo's mouth. He's teething again, 'nuff said!
Another skill is being better and stronger at standing. He spends a couple hours a day on his feet, whether it be in his jumpy stander, or supported by us, he loves to be on his feet and bouncing around. Because of his walker thingy he is also getting better at stepping with his feet when we encourage walking.

Standing on his own! well mostly. the chair helps some.

He has got two other therapists coming in to see him now, in addition to his physical therapist, to work on vision and play skills. There is talk of signing him up for speech therapy soon too. All that sounds pretty intense, but in reality, it is such a blessing that we live in a place where all that is available to us. The more people we have giving us tips and teaching us tricks for stimulating little man's development, the better. It is a lot of work, mental and physical to help Leo reach milestones, but the fruits of our labor make it so worth it. Sometimes we end up going hoarse from cheering him so much, and our cheeks may be sore from smiling and laughing, but that's in a very, very, good way.



This week we meet with his neurologist (finally) to talk to him about Leo's brain development and seizure maintenance. Hopefully, I can convert him to the benefits of pro-active care, at least in the realm of adjusting Leo's Keppra dose in a timely manner, so that we can avoid another episode of that horrific seizure that landed us in the ER last month.

And...
Next week we meet with plastics and neurosurg team to schedule the cranial surgery. Lord have mercy!



What a big goof.







Comments

  1. these pictures are so lovely! love the one of Leo standing! Lord protect and have mercy!

    ReplyDelete
  2. such a cute little guy. Way to go Leo, you are doing awesome, keep up the good work.

    ReplyDelete
  3. Love the little Leo man crawling, awesome job, nicely done helping your brother...Nika :-)

    ReplyDelete
  4. Yay for Leo, yay for nika, yay for mom and dad, yay for the team, yay yay yay God !!! I love the last photo - the closeup of his beautiful blue eyes. Praying for you all....

    ReplyDelete
  5. I love your boy.. He has such a kind look, I think he will be a fine man.. Maybe I like him so much beacuse he looks like my son, who's 18 month, so pretty same age like Leo..
    I hope he'll get better, God must have a plan that He gave Leo such strenght..
    Praying for little Leo, with love..
    A

    ReplyDelete
  6. I'm thrilled that he is doing so well, AND that he is seeing or will be seeing so many therapists (social, play, perhaps speech soon, etc.). I can't tell you how thankful we've been for all of our Gregory's therapies (social, play, speech, etc.). They can move mountains sometimes. And with such a patient little buddy you've got there, he is absorbing so much!!

    We wish you a joyful (and warm!) Christmas!

    the Sokolovs

    ReplyDelete

Post a Comment

Popular posts from this blog

Lost In Summer

It has been a long time...maybe the longest since I have written to you all last. This blog has meant many different things to me over the past seven years, in fact, it has taken as many different manifestations as its subject matter, Leo the little lion! Not so little anymore, in a couple weeks he will be seven years old.  And so will this blog!  It is amazing to think back to the frightening beginning of it all, and to realize that never in a hundred years could I have pictured myself now, sitting and typing this post at my sunny kitchen table, in my own house, while the early morning sounds trickle in from the open porch door and mingle with the voices of my children in the other room. Not one child, as we all thought seven years ago, but two.  Seven years ago, Leo was not going to live to his first birthday. He was not going to be able to talk sweetly to his big sister, as I hear him doing right now. Though I'm sitting in the other room, I can picture them both clearly; his s…

For The NICU

So you guys know that September is the NICU (Neonatal Intensive Care Unit) awareness month right?  Yeah, I didn't know either.  Every month there is some disease or disorder that we should worry, promote, and be aware about...so after awhile all that awareness stuff gets tiring... But this is the first time I've heard of an awareness month for a place, rather than a physical condition. What's up with that? How come we need an awareness month for a section of the hospital? We have an awareness month for breast cancer, not the cancer ward itself...so why the NICU? I'm pretty sure there is a preemie dedicated month, and one for every other condition that may have put the infant in the NICU in the first place, so why the preferential treatment? After thinking about it for awhile, the only reason I could come up with for the need of this awareness of a place, is that the place itself has inherent issues that people (especially potential NICU parents) should be aware of. No…