Skip to main content

Mad Skillz

If there is a will...
Leo will find the way!

Every week, every day, and every hour, his brain is learning, growing and developing. So is his body. It's so awesome to watch. Recent skills of his include totally mastering sitting. He sits independently and is able to rotate his torso all over the place and keep his balance. Today at church the real test came when his loving sister dropped a pillow on his head and he didn't move a muscle, other then those he uses to laugh hysterically with, that is.
Yeah, he's a tough dude, and on top of that he is into slapstick humor big time. Can't wait to watch my favorite Chaplin films with him!
Other nifty things he has learned lately is to throw stuff, dump stuff out, and roll stuff across the floor. And all the stuff eventually ends up doing time in Leo's mouth. He's teething again, 'nuff said!
Another skill is being better and stronger at standing. He spends a couple hours a day on his feet, whether it be in his jumpy stander, or supported by us, he loves to be on his feet and bouncing around. Because of his walker thingy he is also getting better at stepping with his feet when we encourage walking.

Standing on his own! well mostly. the chair helps some.

He has got two other therapists coming in to see him now, in addition to his physical therapist, to work on vision and play skills. There is talk of signing him up for speech therapy soon too. All that sounds pretty intense, but in reality, it is such a blessing that we live in a place where all that is available to us. The more people we have giving us tips and teaching us tricks for stimulating little man's development, the better. It is a lot of work, mental and physical to help Leo reach milestones, but the fruits of our labor make it so worth it. Sometimes we end up going hoarse from cheering him so much, and our cheeks may be sore from smiling and laughing, but that's in a very, very, good way.

This week we meet with his neurologist (finally) to talk to him about Leo's brain development and seizure maintenance. Hopefully, I can convert him to the benefits of pro-active care, at least in the realm of adjusting Leo's Keppra dose in a timely manner, so that we can avoid another episode of that horrific seizure that landed us in the ER last month.

Next week we meet with plastics and neurosurg team to schedule the cranial surgery. Lord have mercy!

What a big goof.


  1. these pictures are so lovely! love the one of Leo standing! Lord protect and have mercy!

  2. such a cute little guy. Way to go Leo, you are doing awesome, keep up the good work.

  3. Love the little Leo man crawling, awesome job, nicely done helping your brother...Nika :-)

  4. Yay for Leo, yay for nika, yay for mom and dad, yay for the team, yay yay yay God !!! I love the last photo - the closeup of his beautiful blue eyes. Praying for you all....

  5. I love your boy.. He has such a kind look, I think he will be a fine man.. Maybe I like him so much beacuse he looks like my son, who's 18 month, so pretty same age like Leo..
    I hope he'll get better, God must have a plan that He gave Leo such strenght..
    Praying for little Leo, with love..

  6. I'm thrilled that he is doing so well, AND that he is seeing or will be seeing so many therapists (social, play, perhaps speech soon, etc.). I can't tell you how thankful we've been for all of our Gregory's therapies (social, play, speech, etc.). They can move mountains sometimes. And with such a patient little buddy you've got there, he is absorbing so much!!

    We wish you a joyful (and warm!) Christmas!

    the Sokolovs


Post a Comment

Popular posts from this blog

Pharmaceutical Fallout

I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. He was seen by his neuro within the hour, and after some bullying and grilling from yours truly, the action plan was det…

Not Your Average Special

Leo. This kid. Honestly? Life with the lion can be quantified in two parts: into a simple 60/40 equation. The 40 being the happy normal parent feelings, and the 60 being sheer exhaustion, confusion, worry, and what-the-hell-is-it-now feelings.  All normal right? Just another day in parent land. Wrong. I have always been an advocate for down-playing the special neediness of special needs. Yeah, yeah we all think we are special in our own unique hardships, get over it. We all have crap in our lives to deal with. But I might be starting to change my outlook.  Just a bit. Case in point: Leo and consequently me and everyone else who lives with him, have now been dealing with daily seizures for well over a year. Ok it doesn't sound that bad, when you string the words together and type it out into a sentence; there are way more scary sentences out there like "your child has a terminal brain defect" sentence etc etc. That sounds way more scary than daily seizures. This I know f…

The Rhythm of Life

When I think of the word rhythm, what comes foremost to my mind is a picture of my grandpa's metronome. My grandpa, when he lived in Russia, was a fairly well known voice professor who dedicated his whole life to the perfection and instruction of the human voice. As long as the human in question was applying said voice to opera and only opera, that is. Opera, in my grandpa's mind, was the only music worth bothering with. All other music he condescendingly referred to as "the bebop" with a lot of Russian eye rolling and sighing. He taught me about rhythm by sticking his old wooden metronome on the edge of his piano, and commanded me to never take my eyes off it during the whole voice lesson. Since it was conveniently eye level to my ten year old self it was pretty easy to get completely mesmerized watching the little weighted metal stick swish side to side, side to side, side to side.  I'm thinking now, almost twenty years later, that it may have been part of gra…