Skip to main content

Can You Sign Love?






I realize that we are overdue for some Leo pictures, but first, let me tell you what is making me happy today.

Well actually, there are a couple things.

First, scroll down and take a peep at the hit counter on this blog. 96, 587??!!! Really? REALLY?! I can't tell you how this makes me feel. Ok, you've convinced me. I'll try to share. The fact that over the last almost two years of Leo's life you have faithfully read this blog, emailed it to friends, and mentioned his name in your prayers, breaks my heart. In a very good way, but there you have it. It breaks my heart to know that over 96 thousand times someone has thought of our boy and read my, very frequently, rambling and badly composed words. I'm so happy that Leo's story holds so much that you are still clicking back to this blog. Why would that make me happy? Because in some way, perhaps that is one of the reasons all this happened in the first place.  No baby is born without purpose and no baby dies without purpose either. Perhaps somewhere, somehow, Leo's story will give someone hope, and I can't imagine a better purpose then that.
All I can say, though trite, is nevertheless, said with the whole heart: THANK YOU!!

The second is that today, Leo officially has communicated his first word. And it seems to fit the theme of this post in some way. Although he has been making sounds like Mama for a while, today he signed the word "baby" at me. After a month of 'Baby Signing Time class," at the local library I wasn't sure if I should write it off as a waste of time since he didn't seem to be catching on. However, today, when Leo was playing with a baby doll which promptly got lost in a corner he turned to me, and very empathically, made the sign for "baby." He was surprised when instead of fetching it for him, his mama started bawling swooped him into a huge and embarrassing bear hug...  Sheesh mum, get a grip!




Ok, baby, I don't promise anything, but you keep using these chubby fingers for signing instead of grabbing and pulling my hair or other parts of my anatomy and I will try to keep the tears of joy from overpowering me too often..



Trying to relax on the new deck. Leo isn't sold yet on the whole new house experience.

 But bouncing around on the bed with big sister is fun anywhere!! These pics taken by said big sis after Leo performed his gymnastics of standing up for a couple second on his own and then free falling backwards. So hilarious, but slighty nerve wracking for the supervising grownup..






Comments

  1. Leo has been a gift to all of us and thank you for sharing him! I do wonder how many people know about Leo and pray for him. He's a permanent fixture on my blog's prayer list, I update about him, he is commemorated at every Liturgy at our parish. And I know I'm one person. Leo is very well loved!!

    ReplyDelete
  2. He is such a cute little boy! I think he gained some weight since last time you put pics with him..:)

    ReplyDelete
  3. Wow, he's really grown since the last picture... what a handsome little man! ;-) I am SO excited about his first word!!! Think about sharing this story at http://www.signingtime.com/stories. <3

    ReplyDelete
  4. It just takes a few seconds to check every day and see if there is more news and more events to praise our God for.....and there are still a group of men at ISP who pray daily for Leo and the whole family. I am grateful for the on going miracle of your son. affectionately, Claire

    ReplyDelete

Post a Comment

Popular posts from this blog

Pharmaceutical Fallout

I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. He was seen by his neuro within the hour, and after some bullying and grilling from yours truly, the action plan was det…

Not Your Average Special

Leo. This kid. Honestly? Life with the lion can be quantified in two parts: into a simple 60/40 equation. The 40 being the happy normal parent feelings, and the 60 being sheer exhaustion, confusion, worry, and what-the-hell-is-it-now feelings.  All normal right? Just another day in parent land. Wrong. I have always been an advocate for down-playing the special neediness of special needs. Yeah, yeah we all think we are special in our own unique hardships, get over it. We all have crap in our lives to deal with. But I might be starting to change my outlook.  Just a bit. Case in point: Leo and consequently me and everyone else who lives with him, have now been dealing with daily seizures for well over a year. Ok it doesn't sound that bad, when you string the words together and type it out into a sentence; there are way more scary sentences out there like "your child has a terminal brain defect" sentence etc etc. That sounds way more scary than daily seizures. This I know f…

The Rhythm of Life

When I think of the word rhythm, what comes foremost to my mind is a picture of my grandpa's metronome. My grandpa, when he lived in Russia, was a fairly well known voice professor who dedicated his whole life to the perfection and instruction of the human voice. As long as the human in question was applying said voice to opera and only opera, that is. Opera, in my grandpa's mind, was the only music worth bothering with. All other music he condescendingly referred to as "the bebop" with a lot of Russian eye rolling and sighing. He taught me about rhythm by sticking his old wooden metronome on the edge of his piano, and commanded me to never take my eyes off it during the whole voice lesson. Since it was conveniently eye level to my ten year old self it was pretty easy to get completely mesmerized watching the little weighted metal stick swish side to side, side to side, side to side.  I'm thinking now, almost twenty years later, that it may have been part of gra…