Skip to main content

Little Boy Blue

Leo has this amazing and sometimes alarming tendency to bring out the best in people. 
I'm not sure how he does it. He isn't that cute. But even a stranger at the grocery store, when faced head on with Leo, finds herself gushing googly-goo at him. Maybe because it doesn't take a genius to see that he is different, and perhaps that second take is what Leo works with. Because when they do glance at him again, he looks up from his one handed stagger (Leo's walk) across the floor and zings them with his baby blues. And at once they are kind; they say, "isn't he doing so well?" etc etc. It's as if suddenly they are experts in his development and want nothing else but give a cheering word. 

Where does that stuff come from?? 

I guess little lion man has a face which tells a story that a brief glance may not even start to uncover. But at the second glance, which is at first, caused by something negative, (like his handicaps) quickly turns into something positive when blasted by his double barreled charm.
 Even I have to do a double take with this guy! Pretty much every stinkin day.

Leo keeps me honest. 

On those days I'm ready to throw in the towel, Leo beats me to it and does something silly with it, like throw it in my face (very appropriately) and makes me totally loose my train of thought (no real loss there).
The other day he had me and his speech therapists in hysterics over his antics. I never realized that I always tilt my head to the side when I look at him, (probably it's a nervous tick) and always worried when he would look back at me, then suddenly keel over to the side, his whole head hanging sideways, until that "duh" moment when I realized that he was copying me and turning my worried motion into slapstick.

Here it is, The Look.
I think kids in general love to be our own personal mirror-mirror-on-the-wall and show us truths that we don't really want to see about ourselves, but little man takes it to extremes, and often adds his own comic spin on it.
And I must say, once I'm done laughing (or crying) I can't be any happier or more grateful for the gift that is my little boy blue.

Little Boy Blue,
Come blow your horn,
The sheep's in the meadow,
The cow's in the corn;
Where is that boy
Who looks after the sheep?
Under the haystack
Fast asleep.
Will you wake him?
Oh no, not I,
For if I do
He will surely cry.


  1. I can't help but smile every time I look at his face or laugh or weep at the stories you loving tell. His forwarding footsteps, we realize, are results of loved ones and prayer warriors prayers and faith. He is an inspiration to me and I am always deeply touched when I look upon a new post. Our God is so great...and so is Leo the lion, a.k.a. Little Boy Blue.

  2. So far my kids have been the most accurate mirror one could ever hope for. The tilted head glance, the burst of energy enthusiasm, the hard day. Sometimes staring into the face of my kids I see the daily walk before me. Slapstick, genuine, hungry and full of love. What more can a mom ask for? THese moments seem so real. A present...present. Lord have Mercy on us. Keep us by thy Grace!

  3. this is beautiful. May God give you strength and comfort for the daily things...


Post a Comment

Popular posts from this blog

Pharmaceutical Fallout

I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. He was seen by his neuro within the hour, and after some bullying and grilling from yours truly, the action plan was det…

Not Your Average Special

Leo. This kid. Honestly? Life with the lion can be quantified in two parts: into a simple 60/40 equation. The 40 being the happy normal parent feelings, and the 60 being sheer exhaustion, confusion, worry, and what-the-hell-is-it-now feelings.  All normal right? Just another day in parent land. Wrong. I have always been an advocate for down-playing the special neediness of special needs. Yeah, yeah we all think we are special in our own unique hardships, get over it. We all have crap in our lives to deal with. But I might be starting to change my outlook.  Just a bit. Case in point: Leo and consequently me and everyone else who lives with him, have now been dealing with daily seizures for well over a year. Ok it doesn't sound that bad, when you string the words together and type it out into a sentence; there are way more scary sentences out there like "your child has a terminal brain defect" sentence etc etc. That sounds way more scary than daily seizures. This I know f…

The Rhythm of Life

When I think of the word rhythm, what comes foremost to my mind is a picture of my grandpa's metronome. My grandpa, when he lived in Russia, was a fairly well known voice professor who dedicated his whole life to the perfection and instruction of the human voice. As long as the human in question was applying said voice to opera and only opera, that is. Opera, in my grandpa's mind, was the only music worth bothering with. All other music he condescendingly referred to as "the bebop" with a lot of Russian eye rolling and sighing. He taught me about rhythm by sticking his old wooden metronome on the edge of his piano, and commanded me to never take my eyes off it during the whole voice lesson. Since it was conveniently eye level to my ten year old self it was pretty easy to get completely mesmerized watching the little weighted metal stick swish side to side, side to side, side to side.  I'm thinking now, almost twenty years later, that it may have been part of gra…