So we have been walking down memory lane with some dear friends of ours the other day, one of which happens to be a doctor at Leo's hospital, remembering all the drama of Leo's birth and the following terminal prognosis. Our doc friend was not there at that time, almost three years ago, but she since then has seen Leo's file opened several times for ethics seminars, lectures, etc. It was fascinating for us to hear Leo's story from the clinical perspective. In some ways, we never knew it was that bad. Well, we knew it was, but ignorance of the fine details is bliss. We didn't even know about Hydrocephalus until we heard the word for the first time in the ultrasound room. For a while now, I have been feeling compassion for the doctors who were on Leo's case. I can't begin to fathom what it must be like, to make diagnosis like his. To be the decider and then the messenger of such news! A painful existence, an exhausting and traumatic experience for parents, often resulting in the breaking apart of families; the ripple effect of a medically unstable child with major neurological problems is huge. I can forgive them for calling the shots they did, but only now, and only after seeing the story from their end.
But now, the story from our end just keeps going. This is the official shout-out that Leo is walking! From a baby who was basically born with no brain whatsoever, no chance at life, (and at the time, they weren't wrong, not at least when faced with the slides of his noggin) Leo is now, officially, a WALKING and talking miracle of love and hope.