Skip to main content

Back Down The Rabbit Hole



So this winterish spring time has, so far, been hard for us all at Chez DuMoulin. It seems to have permanently frozen in that time between the two steps forward and one step back. Many of you know that we've been faced with a housing change, and though that doesn't necessarily mean that it's bad, but what it does mean is change (and I'm not a big fan..) Change that we aren't quite ready for. Since then we've jumped both feet into the housing/real estate wonder (not) land and gotten pretty disenchanted. We still have time to find a new lion den for our lion cub, so its not grim as all that. But the tenacious and frigid winter has not given up yet around here, so the doldrums continue. To really ice the cake, Leo has been pretty ill this past week; starting out with a few mini seizure episodes and turning into full blown infections in his ear, chest, and unfortunately, urinary tract. Oh yeah, fun times! Yesterday was spent in the ER with him, running the standard gamma of Leo tests. Shunt x-ray studies, MRI, urine analysis, because you know, unlike normal kids who when sick get tucked into bed with chicken soup and a movie, Leo gets the full monty. Every. Single. Time. Heck why am I complaining? I was the one who brought him there. Anyway after 6 hours trying to keep a sick, but still active (and pissed off) three year old contained in a tiny ER cell, the results were at best, ambiguous and frustrating. It seems like other then the usual respiratory infection stuff, Leo has fluid collecting in the pleural space of his lung, again. You know that moment when the doctors pronounce something that you weren't prepared to hear, ever again... Yeah it wasn't great.
The goodish news is that there isn't a lot of fluid, not enough to be dangerous to his lung function again, and that his shunt is working properly, since he doesn't seem to have malfunction symptoms. But the doctors are still worried, which in turn makes me even more so. They let us go last night but want to monitor him closely for the next week when we will come back for another x-ray. We are all hoping that the fluid will be gone or at least diminished. If there is more fluid, then more issues will need to be addressed. And I imagine it will mean more surgery.  So please friends, pray for Leo, and for us, that this rabbit hole will be a little one, that this mystery fluid will go away, and that spring will finally come to dispel this eternal winter with it's unmerited hardships.




Cheeky Lion rallying his grin upon leaving the ER.





Comments

  1. I am so sorry to hear; how very stressful. lighting a candle for you all at church tonight and praying...

    ReplyDelete
  2. Praying for you all! Leo is adorable (as always!)

    ReplyDelete
  3. Oh my, I'm sorry to hear this. Leo is prayed for at our church for every service and he is in my daily prayers and has been since birth! We won't stop now! :)

    And what a cutie pie!!

    ReplyDelete
  4. My gosh he's gotten so big! Will continue to keep him close to our hearts.

    ReplyDelete
  5. daily, daily, daily prayers and always will

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

Pharmaceutical Fallout

"Back to the hospital?! You're joking right?!" I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. Day 1 Day 2 (rash got progressively ang...

The School Bus As Metaphor

A school bus can mean all sorts of different things: dread, boredom, excitement, responsibility, change...it means something different to all of us. I was primarily homeschooled as a kid, and though I preferred that, there was still an element of desire and curiosity for me every time I saw a school bus when I was young.  I couldn't help but wonder what it would have been like to be part of the school bus world. Of course I didn't have to wonder about it for very long because I did, in many ways, have the ideal education. There was that time I took the winter off from school instead of summer to practice my extra curricular work which was...downhill skiing and snowboarding. Then there was the part-time jobs at the local farms that I was able to do because of my own set and very flexible school hours. To clarify, because it sounds like I didn't do any academics at all in the above two sentences, I did. Lots. Tons. But I did them efficiently and completely independently, e...