Skip to main content

Lion Shirts, Seizures, and Soccer


Summer has finally graced us in Vermont with her sunny presence and let me tell you, we are packing in as much outdoor fun as we can here at Chez Little Lion, and so far things have been going wonderfully, with only a minor hiccup here or there. One of such hiccups was a brief seizure episode last week which trapped Leo with a sneaky ambush attack in the early hours of the morning. This was definitely ambush tactics because the opposing forces (me and my handy meds) were sleeping and off duty! When I was finally awoken by the ruckus caused by a full fledge seizure battle, I retaliated immediately with lightning fast reflexes and the enemy was vanquished while I was running around desperately trying to find some clean (ahem..) clothes in which to take the lion to the ER if the enemy persisted in battle. However, as it happened I got to stay in my pjs because the seizure monster slunk off in the face of the majesty of pure chemistry, and Leo was left a bit snowed, but completely happy in the knowledge of his victory this time. My reasoning for this event was the extreme shift in the weather in addition to a developing fever and cold that he came down with that night. It was a perfect seizure storm, but every time that I deal with a seizure like this at home, the less scared and anxious I get about the next time.
That's all well and good, but I am also reminded here by the fact that where typical kids just get fevers and snots, my kid gets seizures too. There are so many different opinions and trends surrounding kids health and medicine that I am afraid to really delve into it; think of ocean rip tides and undertow...but I do want to say my brief spiel and then I will leave it at that; that this is good for EVERYONE to think about it. We are surrounded by fragile children wether we see them or not, who depend on others for their health and safety. Yeah Leo will get just a seizure which usually can be fixed without much damage from a snotty child's handshake or toy, but there are children with very compromised immunities who may not only get seizures but may also become severely compromised. I think of it as an action of love and support to the fragile members of our community, even if I hate introducing chemical interventions into my baby's pure body, or really want to get out of the house with my stir crazy but slightly snotty kids, or I've read a crunchy article that glorifies spreading sickness (because it's GOOD for you) by sending kids sick to daycare... if my kids or me are sick, even a little, we stay home. And we get vaccinated. Because it's not what I think or believe in, it's what little I and my family can do to help others who aren't so healthy. Ok. Lecture over.

In other news, if you have all been wondering why the posts lately have been far and few between it's all been for a good cause... We have had our creative caps on and the creative juices were flowing! That's not something you can control so one must strike will the iron is hot. With the help of my inexhaustible parents we have come up with an Honorary Lion T-Shirt! One that everyone can have! I know! It is totally awesome! Of course don't let me tell you, check it out for your self.








We are making them at home, and embroidering lions on any scrap of fabric that we can lay our hands on. It's fun! So since we love to share the fun, I made up all these nifty PayPal buttons on the right of the blog so everyone can have some little lion fun. The price pretty much covers the cost of the shirt and embroidery. The rest will go into making new shirts! So the fun continues...
Who knows what we will come up with next!

Although the next project needs to wait until the World Cup is over...


In addition to seeing his favorite kind of ball zooming around, Leo enjoys the snacks that accompany the watching of the Cup.


And running around his own pretend soccer pitch at home.
GO USA!
Go Little Lion man!
Go cool T-shirts!


Comments

Popular posts from this blog

Pharmaceutical Fallout

I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. He was seen by his neuro within the hour, and after some bullying and grilling from yours truly, the action plan was det…

Not Your Average Special

Leo. This kid. Honestly? Life with the lion can be quantified in two parts: into a simple 60/40 equation. The 40 being the happy normal parent feelings, and the 60 being sheer exhaustion, confusion, worry, and what-the-hell-is-it-now feelings.  All normal right? Just another day in parent land. Wrong. I have always been an advocate for down-playing the special neediness of special needs. Yeah, yeah we all think we are special in our own unique hardships, get over it. We all have crap in our lives to deal with. But I might be starting to change my outlook.  Just a bit. Case in point: Leo and consequently me and everyone else who lives with him, have now been dealing with daily seizures for well over a year. Ok it doesn't sound that bad, when you string the words together and type it out into a sentence; there are way more scary sentences out there like "your child has a terminal brain defect" sentence etc etc. That sounds way more scary than daily seizures. This I know f…

The Rhythm of Life

When I think of the word rhythm, what comes foremost to my mind is a picture of my grandpa's metronome. My grandpa, when he lived in Russia, was a fairly well known voice professor who dedicated his whole life to the perfection and instruction of the human voice. As long as the human in question was applying said voice to opera and only opera, that is. Opera, in my grandpa's mind, was the only music worth bothering with. All other music he condescendingly referred to as "the bebop" with a lot of Russian eye rolling and sighing. He taught me about rhythm by sticking his old wooden metronome on the edge of his piano, and commanded me to never take my eyes off it during the whole voice lesson. Since it was conveniently eye level to my ten year old self it was pretty easy to get completely mesmerized watching the little weighted metal stick swish side to side, side to side, side to side.  I'm thinking now, almost twenty years later, that it may have been part of gra…