Skip to main content

For The NICU

So you guys know that September is the NICU (Neonatal Intensive Care Unit) awareness month right? 
Yeah, I didn't know either. 
Every month there is some disease or disorder that we should worry, promote, and be aware about...so after awhile all that awareness stuff gets tiring...
But this is the first time I've heard of an awareness month for a place, rather than a physical condition. What's up with that? How come we need an awareness month for a section of the hospital? We have an awareness month for breast cancer, not the cancer ward itself...so why the NICU? I'm pretty sure there is a preemie dedicated month, and one for every other condition that may have put the infant in the NICU in the first place, so why the preferential treatment?
After thinking about it for awhile, the only reason I could come up with for the need of this awareness of a place, is that the place itself has inherent issues that people (especially potential NICU parents) should be aware of. Not just parents, but those who may at some point have the opportunity and perhaps privilege, of supporting a parent of a NICU baby. As I have mentioned in a previous post, I have done some research into NICU ethics and protocols over the summer. I have been trying to make sense of my own experience when Leo was born, and in some ways, this project was therapeutic for me. Stepping back from the purely emotional aspect, and reexamining the events from Leo's birth in a completely objective and scholarly way answered many lingering questions that have been rolling around in my brain for years. It took a twenty plus page research paper and a movie to really put it all in perspective for me. 
So, I think understand why there is an awareness month for the NICU and so with that thought in mind, I have decided to share my paper here on Leo's Blog. As most research papers go, my paper is perhaps not what first comes to mind, but I can vouch for the information there as being accurate and true.
Awareness is less of a passive exercise, or a cathartic experience, but it is more like an education with a goal.  And the goal is of course, to help, to support, and to understand, those who may be suffering. There is much suffering all around, and plenty of it can be found in the NICU.
So get comfy with a nice cup of tea, read my story, and perhaps by learning about the NICU, you too can help someone's suffering to be just a little bit better.
Let me know what you think!


Comments

Popular posts from this blog

Pharmaceutical Fallout

I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. He was seen by his neuro within the hour, and after some bullying and grilling from yours truly, the action plan was det…

Not Your Average Special

Leo. This kid. Honestly? Life with the lion can be quantified in two parts: into a simple 60/40 equation. The 40 being the happy normal parent feelings, and the 60 being sheer exhaustion, confusion, worry, and what-the-hell-is-it-now feelings.  All normal right? Just another day in parent land. Wrong. I have always been an advocate for down-playing the special neediness of special needs. Yeah, yeah we all think we are special in our own unique hardships, get over it. We all have crap in our lives to deal with. But I might be starting to change my outlook.  Just a bit. Case in point: Leo and consequently me and everyone else who lives with him, have now been dealing with daily seizures for well over a year. Ok it doesn't sound that bad, when you string the words together and type it out into a sentence; there are way more scary sentences out there like "your child has a terminal brain defect" sentence etc etc. That sounds way more scary than daily seizures. This I know f…

The Rhythm of Life

When I think of the word rhythm, what comes foremost to my mind is a picture of my grandpa's metronome. My grandpa, when he lived in Russia, was a fairly well known voice professor who dedicated his whole life to the perfection and instruction of the human voice. As long as the human in question was applying said voice to opera and only opera, that is. Opera, in my grandpa's mind, was the only music worth bothering with. All other music he condescendingly referred to as "the bebop" with a lot of Russian eye rolling and sighing. He taught me about rhythm by sticking his old wooden metronome on the edge of his piano, and commanded me to never take my eyes off it during the whole voice lesson. Since it was conveniently eye level to my ten year old self it was pretty easy to get completely mesmerized watching the little weighted metal stick swish side to side, side to side, side to side.  I'm thinking now, almost twenty years later, that it may have been part of gra…