Skip to main content

For The NICU

So you guys know that September is the NICU (Neonatal Intensive Care Unit) awareness month right? 
Yeah, I didn't know either. 
Every month there is some disease or disorder that we should worry, promote, and be aware about...so after awhile all that awareness stuff gets tiring...
But this is the first time I've heard of an awareness month for a place, rather than a physical condition. What's up with that? How come we need an awareness month for a section of the hospital? We have an awareness month for breast cancer, not the cancer ward itself...so why the NICU? I'm pretty sure there is a preemie dedicated month, and one for every other condition that may have put the infant in the NICU in the first place, so why the preferential treatment?
After thinking about it for awhile, the only reason I could come up with for the need of this awareness of a place, is that the place itself has inherent issues that people (especially potential NICU parents) should be aware of. Not just parents, but those who may at some point have the opportunity and perhaps privilege, of supporting a parent of a NICU baby. As I have mentioned in a previous post, I have done some research into NICU ethics and protocols over the summer. I have been trying to make sense of my own experience when Leo was born, and in some ways, this project was therapeutic for me. Stepping back from the purely emotional aspect, and reexamining the events from Leo's birth in a completely objective and scholarly way answered many lingering questions that have been rolling around in my brain for years. It took a twenty plus page research paper and a movie to really put it all in perspective for me. 
So, I think understand why there is an awareness month for the NICU and so with that thought in mind, I have decided to share my paper here on Leo's Blog. As most research papers go, my paper is perhaps not what first comes to mind, but I can vouch for the information there as being accurate and true.
Awareness is less of a passive exercise, or a cathartic experience, but it is more like an education with a goal.  And the goal is of course, to help, to support, and to understand, those who may be suffering. There is much suffering all around, and plenty of it can be found in the NICU.
So get comfy with a nice cup of tea, read my story, and perhaps by learning about the NICU, you too can help someone's suffering to be just a little bit better.
Let me know what you think!


Comments

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

Putting The Lion Back Into The Wild

I'm actually home tonight while the 'boys" are at the PICU for what could be, maybe, possibly, our last night. It's almost hard to believe that we could go home. It's like those animals who have been in captivity who are finally let out almost don't know what to do, and often cower in fear and confusion in their cages. We would be cowering, but that sounds like it takes too much energy. We are completely exhausted after ten days of this shunt malfunction marathon.  Yesterday afternoon Leo had the hopefully final surgery to fix his shunt. The Neurosurgeon replaced all the tubing and tunneled a whole new channel for it as far away from his lungs as possible. During which he discovered that the connection between the tubing and the shunt valve was leaking and welling up CSF as he was examining it. Also his old tubing was inserted pretty high under his breastbone which often can jeopardize the integrity of the surrounding tissues; in other words, the plu...

Kinda Like 'Nam.

First off, sorry about the disjointed nature of the posting from yesterday. I was updating via text messegaing from my phone and because the service is patchy in the hospital not only were the posts chopped up but they were frequently out of order. You have to be a sleuth to figure it out. On the other hand, I guess it was a direct reflection of what we were experiencing! Between getting little bits of info and there, we had no clue what was going on. This is what we have been able to piece together since yesterday. The surgery itself was a definite success, though there were a few surprises. One of which being that when they took out Leo's shunt of 8 months they discovered that it was not working. Huh??? He never showed any symptoms of shunt failure and brain compression, so what the heck? In between the sobering list of items now holding risks for our guy, the nuero surgeon dropped this little bombshell on us. Does that ...