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deconstructive vs. reconstructive

On Reconstructive...
It's been a good Leo day!  We took him to see the neurosurgeon today and he continues to impress his lovely personality on the doctors and nurses who this time were poking their heads to see the little man.  The purpose was to discuss how to "fix" the shape of Leo's head.  The suture lines of his scull are very prominent because of how stretched his plates were at the time of his birth.  There is a surgery to fix his head.  This doctor has the power to create, literally to sculpt, babies heads!  How many of us can say this is part of our portfolio?  This is very intense surgery and today we learned more about what is happening in that field.  Amazing stuff.  We will not be doing anything "reconstructive" on Leo until he is at least a year old.  If he continues to thrive as he is doing now...gaining weight, body tone, and cognitive abilities, it may be a viable option for us at the time.  For us "reconstructive" means trying to manage the shape of his head as he grows into it so he can gain back the one thing he is lacking developmentally which is head control. 

On Deconstructive...
The doctors said that his brain development in the womb was a "deconstructive process".  Here we are five months later and we are ordering neck braces, helmet's (to begin to reshape his head), and talking reconstructive surgery!  Of course all of it hinges on his development in the next six months.  His brain tissue notwithstanding any move from deconstructive to reconstructive is a victory for Leo because then I believe we are aiming at his continued growth for however long his journey is.             

Anyway, you get the point of my muse.  We are hopeful that by aiming at this reconstructive process, in whatever form it will take, it will follow Leo's lead that he has set brilliantly so far. 
Enjoy the pictures!


  1. I'm so glad things continue to go well! And he is absolutely adorable!!

  2. Thank you so much for letting us share a bit of your life with Leo. The pictures are always such a joy to see. Love and prayers to everyone.

  3. You have such a beautiful son. I usually don't compliment babies online, but here goes. :]

  4. He is so precious. Thank you so much for sharing all of this with all of us! OUr continued prayers and support are with you!

  5. It's his eyes and his smile - I just grin from ear to ear when I see him ! You are SO blessed. And Nika is just as beautiful :)

  6. Leo is getting to be so cute. I hope all goes well for all of you and the hard decisions you have to make. He certainly is a gentle spirit.

  7. These are great and I'm so glad he has golden hair like a lion too.

  8. What beautiful joy in his eyes - Leo, you just keep on showing the doctors that anything is possible.

    Bev (Elaine A.'s big sis)

  9. I am so glad to hear that Leo is doing well. We pray for him every day. The first photo is just precious. What a handsome little guy!


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