Skip to main content

The Date

If it has to do with Leo, you can be sure that it will have some added element of twisted fate. Be it great or small, and usually it is something so small and insignificant that you don't even think twice about it, until you look back and realize that it was actually the small push on a rudder that sent you spiraling into a completely new direction.

Like how all this started with him.

How in the very beginning I missed my 20wk ultrasound because of an accidental thing like a snowstorm and a school exam. How when we finally found out about Leo's state was because of a hunch from my midwife, how one tiny little decision after another found us all living fairly normally at home, how because of the arrival of seizures, he had an EEG, and how his neurologist noticed that his EEG looked really good (nobody expected that! Except his parents that is..) which then made him sit up and revisit his files and then call for a MRI 4 months earlier then scheduled. And from then how there was a last minute cancellation and we got that MRI done a month earlier then planned, in which we found out the best news of all, that Leo was in fact, not terminal, and that he has almost all the brain he needs to live and thrive. How the scan also showed the trapped pockets of fluid on top of his head and saved him 4 weeks of pain and extra pressure from his cranial helmet that he had just gotten the day before. And how we have finally arrived here, at the flat, calm section in which we collect ourselves before the stretch with the big jumps that we will throw ourselves and our hearts over in a few short weeks. The surgery that was very tentatively planned for this coming fall is now actually happening, for real, on June 1st. How even this date happened only by a strange twist of fate. The secretaries decided to try for this date only if a certain patient would be willing to reschedule, and while they were discussing this, the very same patient called herself before they could even lift the phone, to re-schedule! At this point, I would expect nothing less.

And so we find ourselves in that unique position of completely giving him over to faith once again, to leave our comfort zone in the hopes of a better place. We are freaked out, but we are also trusting in the path that we are on. This guy makes his own destiny, he carves out his own life out of impossibilities, he is our true miracle and that is the norm to which I hold on to. We will be having a Holy Unction service for him before the surgery, and I will post the date once we figure it out. All those of Leo's cheerleaders, readers, supporters, and friends are of course, as always, welcome!

Comments

  1. Christ is Risen! I am so happy for you! I have been following little Leo for a few months. I am so very happy for all of his progress. He is absolutely adorable. My daughter is a couple of months younger than him. I love seeing all of his pictures.

    ReplyDelete
  2. He just continues to amaze! All of you will continue in my prayers.

    ReplyDelete

Post a Comment

Popular posts from this blog

Lost In Summer

It has been a long time...maybe the longest since I have written to you all last. This blog has meant many different things to me over the past seven years, in fact, it has taken as many different manifestations as its subject matter, Leo the little lion! Not so little anymore, in a couple weeks he will be seven years old.  And so will this blog!  It is amazing to think back to the frightening beginning of it all, and to realize that never in a hundred years could I have pictured myself now, sitting and typing this post at my sunny kitchen table, in my own house, while the early morning sounds trickle in from the open porch door and mingle with the voices of my children in the other room. Not one child, as we all thought seven years ago, but two.  Seven years ago, Leo was not going to live to his first birthday. He was not going to be able to talk sweetly to his big sister, as I hear him doing right now. Though I'm sitting in the other room, I can picture them both clearly; his s…

For The NICU

So you guys know that September is the NICU (Neonatal Intensive Care Unit) awareness month right?  Yeah, I didn't know either.  Every month there is some disease or disorder that we should worry, promote, and be aware about...so after awhile all that awareness stuff gets tiring... But this is the first time I've heard of an awareness month for a place, rather than a physical condition. What's up with that? How come we need an awareness month for a section of the hospital? We have an awareness month for breast cancer, not the cancer ward itself...so why the NICU? I'm pretty sure there is a preemie dedicated month, and one for every other condition that may have put the infant in the NICU in the first place, so why the preferential treatment? After thinking about it for awhile, the only reason I could come up with for the need of this awareness of a place, is that the place itself has inherent issues that people (especially potential NICU parents) should be aware of. No…