Skip to main content

Hurry Up And Wait

Still waiting to hear on the dates of the surgery. It's kinda like going to the dentist. You really don't want to go, but you really just want it over with. Which I why I am hounding the secretaries at Dartmouth, and putting the pedi neurology on speed dial. They must love me there! Oh no they say, it's that crazy mum again who asks all the questions about the new filing system and comes wheeling back here with a funny looking baby in a giant off road stroller and makes us riffle through the stacks of paper work we were leaving for the weekend, or better yet, for after vacation... No I know that I'm wrong and it's all in a days work for those capable ladies. I just dying to know what/when to expect the 'big cut," and yet at the same time would be perfectly happy not knowing and just snuggling my funny face boy on the couch for the rest of my days. Alas, our days are numbered and our sleepless nights are just beginning.
Anyway, we are hoping and not hoping to find out the date this week, and pray for God to be merciful, that it will happen soon, and that our double sided emotions will finally become easier to define.
Here are some new pics of the Leo, being his super cute self. The chub blub on his midriff as been noted by many and he certainly takes the prize in being the most lovable bit of chunk. And for being the toughest! Check out his moves! He's rolling and picking up his head...and that is no small feat!















Comments

  1. Rejoice! He shines with the love of God!

    with many prayers, Claire

    ReplyDelete
  2. Surgery or no surgery with those blue eyes and that smile he's a very handsome chap. I pray for him every day and always will... and I do hope with all my heart you get a date soon.

    ReplyDelete
  3. What a love bug. Praying they get the date set & you're all home & healthy before you know it.

    ReplyDelete
  4. Praying for you guys daily! I just can't get over how stinkin' adorable Leo is :) He is too cute.

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

Pharmaceutical Fallout

"Back to the hospital?! You're joking right?!" I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. Day 1 Day 2 (rash got progressively ang...

The School Bus As Metaphor

A school bus can mean all sorts of different things: dread, boredom, excitement, responsibility, change...it means something different to all of us. I was primarily homeschooled as a kid, and though I preferred that, there was still an element of desire and curiosity for me every time I saw a school bus when I was young.  I couldn't help but wonder what it would have been like to be part of the school bus world. Of course I didn't have to wonder about it for very long because I did, in many ways, have the ideal education. There was that time I took the winter off from school instead of summer to practice my extra curricular work which was...downhill skiing and snowboarding. Then there was the part-time jobs at the local farms that I was able to do because of my own set and very flexible school hours. To clarify, because it sounds like I didn't do any academics at all in the above two sentences, I did. Lots. Tons. But I did them efficiently and completely independently, e...