Skip to main content

Hurry Up And Wait

Still waiting to hear on the dates of the surgery. It's kinda like going to the dentist. You really don't want to go, but you really just want it over with. Which I why I am hounding the secretaries at Dartmouth, and putting the pedi neurology on speed dial. They must love me there! Oh no they say, it's that crazy mum again who asks all the questions about the new filing system and comes wheeling back here with a funny looking baby in a giant off road stroller and makes us riffle through the stacks of paper work we were leaving for the weekend, or better yet, for after vacation... No I know that I'm wrong and it's all in a days work for those capable ladies. I just dying to know what/when to expect the 'big cut," and yet at the same time would be perfectly happy not knowing and just snuggling my funny face boy on the couch for the rest of my days. Alas, our days are numbered and our sleepless nights are just beginning.
Anyway, we are hoping and not hoping to find out the date this week, and pray for God to be merciful, that it will happen soon, and that our double sided emotions will finally become easier to define.
Here are some new pics of the Leo, being his super cute self. The chub blub on his midriff as been noted by many and he certainly takes the prize in being the most lovable bit of chunk. And for being the toughest! Check out his moves! He's rolling and picking up his head...and that is no small feat!















Comments

  1. Rejoice! He shines with the love of God!

    with many prayers, Claire

    ReplyDelete
  2. Surgery or no surgery with those blue eyes and that smile he's a very handsome chap. I pray for him every day and always will... and I do hope with all my heart you get a date soon.

    ReplyDelete
  3. What a love bug. Praying they get the date set & you're all home & healthy before you know it.

    ReplyDelete
  4. Praying for you guys daily! I just can't get over how stinkin' adorable Leo is :) He is too cute.

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

The Heart Knows

Today during the physical therapist's visit, Leo was put through his paces. She had a whole list of things, 40 to be exact, of regular newborn motor reflexes and characteristics. Each one gets a check-mark (or not) and then a total score once she tallies up all the information that she observed. Although the final score for Leo really itself doesn't matter, the test was more to establish a baseline of development for Leo, and to find his strengths and weaknesses. Once this baseline is established, it will be easier to tell any progression and growth. Just since her last visit, she observed that Leo was doing a much better job of keeping his head in mid-line position. Before he would always keep it on one side or the other. She also determined during the exam that Leo definitely tracked her with his eyes and responded to sound. More specifically, to my voice. She had him on his tummy facing away from us, and she shook a rattle and made some noise to see if he would move his head...

Shunts Away!

Here is just a quick update for all those waiting and praying for our Leo, before we go collapse in bed for the night. Leo was prepped and ready for surgery early this morning, but they only took him around two in the afternoon. We were there with him for most of the day today, just waiting and biting our nails. The anesthesiologist, a very nice British guy, came up around lunch to talk to us about the risks etc in Leo's case. Apparently because of his tucked up little chin, the regular breathing tube could not be used without lots of maneuvering and fiber optic tools. The anesthesiologist decided to use another breathing aid that isn't normally used for babies; a little tube that only goes down into his larynx, and does not do much more then blow some air down. Most of the breathing support would have to come from Leo himself. Typically under anesthesia babies need help to breathe, so the anesthesia team takes over the breathing. However the side effect of that is the newborns...