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And Just Like That

The swelling is gone.

Within a couple days, the waters under Leo man's scalp have gone! What a biazare thing. Just like the mad rivers that flooded our little towns after Irene receded in a matter of a day, so the same with little dude. We spent today coming up with adjectives to describe his "new" head. Not a cone head or tower head anymore, but more like a square head? Sponge Bud Square Head! It's very interesting to see now what they managed to change, and what stayed the same. Like his funky cowlick on the back top part of his head. Don't think I would have lost sleep over that being gone... In any case, it is a HUGE improvement over what his head used to be like. Wow! Although it still takes a conscious effort on my part to take off his hats in public. I think I can I think I can!

Leo himself is definitely feeling the freedom of the relieved weight. He can now hold his head on his own, with very minimal support on his trunk while sitting up, and even standing! His PT can't get any more excited about his progress. We are so proud him sometimes that we feel like our hearts would just burst. Perhaps this means that we can start to phase out all the "special" equipment that has found its way into our house. Nothing would please me more.

Sometimes I wonder, why did we get so lucky? How is it possible that from a terminal vegetative diagnosis we are here? Bouncing this giggly and cooing kid on our knee, and basically treating him like he's completely normal? How? Is there anyway that we can live up to this gift that was given us? It boggles the mind. The thing that we really don't want to do is take all this for granted. To start thinking that we deserve all this. Well heck, we surely don't and every smile, new development and milestone from Leo is like the best Christmas every single time.

Here are some shots of little lion's new look! On Monday we have a quickbrain MRI and meeting with the magicians who worked this magic for us, and hopefully we will get a clearer picture as to what Leo's future will be in terms of surgeries.




Apple picking in style! So thrilled he can ride in the backpack now.

Notice the scar. He makes Potter's lightening scar look really lame.





Just to remind ya'l of what his head used to look like:



Comments

  1. Yayyyyy to being able to hold his head up by himself!

    ReplyDelete
  2. Leo you are amazing. Way to go, so happy to hear about you holding your head up.

    ReplyDelete
  3. Glory to God in the highest and peace to his people on earth!
    Claire

    ReplyDelete
  4. FANTASTIC! Again I have to say that he is adorable. :) He must be loving the new vantage point! God is good.
    Tina

    ReplyDelete

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