Skip to main content

Seizure:0 Med:1

On Friday, I was procrastinating the whole bedtime thing. You know, when that slightly maniacal feeling comes over you, where you just want to wash a couple more dishes, or finish the laundry, or at least pick up the toys, or BUST? Well I was in the grips of this get-stuff-done fever when I almost tripped over Leo, who just several minutes earlier was playing happily and creating more mess, and who was now, lying in the hallway acting weird.
So far, when he has gotten his seizures previously they were in the middle of the night, or in nap time so by the time I caught them, they were full blown. What alerted me right away to Leo was that this time, it looked like his whole left side had shut off, almost like a stroke victim, so when he was tried to crawl he kept collapsing and screaming in frustration. My heart pretty much burst out of my chest like an alien and hid under the table, shaking. The rest of me grabbed him and recognized the fact that he was beginning to seize. It had already started on his foot.
Pleasepleasepleaseplease work work workworkwork.....was the only thought in my brain as I pulled out his seizure rescue med that we were given five months ago when he had his last seizure. Somehow I managed to draw up the right dose, and attach the nasel spray thingie and squirt it in his nose with him screaming bloody murder the whole time. Nika was dancing around chirping: what's happening, what's happening, over and over. It was her first time seeing her brother go through this. Without waiting to see if the med worked we gathered up the whole kit and kaboodle and rushed to the car. If the med wasn't going to work I wanted to get to the ER, ASAP. Justin drove while I sat in the back with the kids, holding Leo on his side and watching his breathing. Before we cleared the driveway the jerking in his foot had stopped. And by the time we were at the halfway point he was stirring and trying to play with a toy. We pulled over and called the attending neurologist who confirmed our instinct to NOT do the whole ER thing. The new medicine had actually worked and Leo was even coming out of the groggy fog and didn't seem snowed. Wow.
We headed back home and after getting the kiddos to bed, collapsed on the couch. The chores can wait gosh darn it.
The next morning after a full nights rest, for Leo that is, I was up every hour checking him, he just seemed a little weak and shaky on the left, and by the end of the day he was totally back to normal. I managed to, with the help of some phone stalking, get his neuro to adjust his keppra and raise the dosage. We are so so so glad that this seizure happened now, and not on our vacation to the Adirondacks over the fourth. We are so incredibly relieved, knowing that we have a med that can stop his seizure, and that we can avoid the hospital ordeal. Thank God, thank you God for that and all the incredible blessings that Leo has. He is one lucky cat.


  1. scary; thanking God the med worked... ; May you and family esp Leo be protected this 4th!

  2. Thank you, Lord! Will be praying for a safe journey.

  3. God bless! That must have been so scary.


Post a Comment

Popular posts from this blog

Lost In Summer

It has been a long time...maybe the longest since I have written to you all last. This blog has meant many different things to me over the past seven years, in fact, it has taken as many different manifestations as its subject matter, Leo the little lion! Not so little anymore, in a couple weeks he will be seven years old.  And so will this blog!  It is amazing to think back to the frightening beginning of it all, and to realize that never in a hundred years could I have pictured myself now, sitting and typing this post at my sunny kitchen table, in my own house, while the early morning sounds trickle in from the open porch door and mingle with the voices of my children in the other room. Not one child, as we all thought seven years ago, but two.  Seven years ago, Leo was not going to live to his first birthday. He was not going to be able to talk sweetly to his big sister, as I hear him doing right now. Though I'm sitting in the other room, I can picture them both clearly; his s…

For The NICU

So you guys know that September is the NICU (Neonatal Intensive Care Unit) awareness month right?  Yeah, I didn't know either.  Every month there is some disease or disorder that we should worry, promote, and be aware after awhile all that awareness stuff gets tiring... But this is the first time I've heard of an awareness month for a place, rather than a physical condition. What's up with that? How come we need an awareness month for a section of the hospital? We have an awareness month for breast cancer, not the cancer ward why the NICU? I'm pretty sure there is a preemie dedicated month, and one for every other condition that may have put the infant in the NICU in the first place, so why the preferential treatment? After thinking about it for awhile, the only reason I could come up with for the need of this awareness of a place, is that the place itself has inherent issues that people (especially potential NICU parents) should be aware of. No…