Skip to main content

Change Our Sadness

So due to popular demand, I finally beat my iMovie program into submission and was able to put together Leo's annual movie.. Hope you like it! And don't be afraid to leave a comment, even if you are new to us and our journey. Sometimes I panic that our words get lost in the mumble and jumble of the www, though the hit counter on the blog here proves otherwise! (I still can't believe we are way over 100,000!)
In some way, this movie is a tribute to all of Leo's faithful readers and followers who come back time and again to check up on him and also especially to those who have prayed for him, and make room for our little lion in their hearts. You have our eternal gratitude and awe!

Whenever I pull up the photos from two years ago now, when our little man's story started, I always find myself wincing and flinching, and in some way, feeling the pain that we felt way back then.  I always have take a couple deep breaths, maybe say a prayer or two, before I can really view them comfortably. However at the same time, I also remember feeling happy when I took the pictures. Even though we thought Leo was going to die, even though we were in emotional no mans land, every time I captured his look, his expression, his "aliveness" I was happy, if just for a second or two. So it always takes me a moment to stop feeling sorry for my past self, and to let the happiness seep in. Even on hospice, even in the midst of suffering, there is joy to be found and peace to be had. I say this, because my thoughts and prayers today have been with a family who I don't even know, but heard about through a friend. They are going through something very similar with their several week old baby girl who is not expected to live. I'm praying for their courage and for peace, and also for a bit of the eternal joy that can be found in sadness for them. We all know miracles can and do happen, but as weird as it sounds, there is also the miracle of peaceful and bearable grief. Because every moment eventually passes, and every season eventually changes, as do the sharper feelings get stripped and blurred away, until, hopefully, it is easier to remember the smiles and the peaceful moments, instead of the hard and bitter ones.
This is what I tried to highlight, at least in some small way, in this little movie that is just in time for Leo's second birthday this coming Thursday.


  1. love this movie; may God bless and protect!!

  2. I love this as I love the little Lion and all of you. It made me cry in both sadness as I thought of all you've been through, and joy as I think of all that Leo has acomplished and the joy that he brings the world. He is an inspirational gift from God and will hold a piece of my heart forever. Thank you for so unselfishly sharing him with us. Love, hugs and prayers.

  3. I check this blog regularly. I absolutely LOVE seeing the progress!! I wonder if the baby girl you mention is the one I cared for because if it is, I gave them your blogsite!! Perhaps you will connect. When I first met Leo, I knew there was more to him than was being said. I feel the same about the baby girl!!!

  4. What a wonderful job sharing God's miracle with us. Leo is a inspiration to all of us-a light of strength.
    Happy Birthday, Leo

  5. Beautiful video. Many, many more blessed years, Leo.

  6. Happy Birthday, Leo! May God grant many years to you and your family!
    Dear Anna, I've been reading and watching this wonderful story of your family you are sharing with us and feeling very grateful to you for your courage. What a wonderful Leo, little lion, you have.
    with love and prayers

  7. Thank you so much for sharing him with us. It's unbelievable how much that boy has been through, and that he keeps on going with that SMILE! Special boy indeed. Happy Happy birthday to him. Fabulous video. :)

  8. Hi Leo
    Hi My Name is Jenna
    You are a brave courageous fighter, and an inspiration.
    I was born with a rare life threatening disease, 14 other medical conditions, and developmental delays.
    Tis a lesson you should heed,
    Try, try again;
    If at first you don't succeed,
    Try, try again;
    Then your courage should appear,
    For, if you will persevere,
    You will conquer, never fear;
    Try, try again
    who invented fire? some bright spark

  9. Mr. Leo, You make us smile through the tears!!!!! Thank you for warming our hearts and through your LIFE reasuring us that God is always near. With Much love The Smalleys Keep sharing! We love watching Leo grow even if it is (most of the time) from afar!!!!

  10. If it were my call, I'd present Oscars to Leo for Best Actor and Oscars to his family as Best Supporting Actors. The miracle continues......!

  11. Hey there. That movie is really something special. What a gift you have.

  12. Hello! And, happy, happy birthday to Leo! I followed your posts regularly for at least Leo's first 6 months and then just lost touch, but I've subscribed via email now, thanks to Gwen's FB share :) Though we didn't know each other well, your presence on campus was grace in my life. Thank you for all the many ways you have always let God's grace show through your lives! My family is seeing a great deal of sadness and illness right now, and Leo's story reminds me that our God is God of Life. Thanks for sharing the videos and keeping the blog. What a gift. Thank you.


Post a Comment

Popular posts from this blog

Lost In Summer

It has been a long time...maybe the longest since I have written to you all last. This blog has meant many different things to me over the past seven years, in fact, it has taken as many different manifestations as its subject matter, Leo the little lion! Not so little anymore, in a couple weeks he will be seven years old.  And so will this blog!  It is amazing to think back to the frightening beginning of it all, and to realize that never in a hundred years could I have pictured myself now, sitting and typing this post at my sunny kitchen table, in my own house, while the early morning sounds trickle in from the open porch door and mingle with the voices of my children in the other room. Not one child, as we all thought seven years ago, but two.  Seven years ago, Leo was not going to live to his first birthday. He was not going to be able to talk sweetly to his big sister, as I hear him doing right now. Though I'm sitting in the other room, I can picture them both clearly; his s…

For The NICU

So you guys know that September is the NICU (Neonatal Intensive Care Unit) awareness month right?  Yeah, I didn't know either.  Every month there is some disease or disorder that we should worry, promote, and be aware after awhile all that awareness stuff gets tiring... But this is the first time I've heard of an awareness month for a place, rather than a physical condition. What's up with that? How come we need an awareness month for a section of the hospital? We have an awareness month for breast cancer, not the cancer ward why the NICU? I'm pretty sure there is a preemie dedicated month, and one for every other condition that may have put the infant in the NICU in the first place, so why the preferential treatment? After thinking about it for awhile, the only reason I could come up with for the need of this awareness of a place, is that the place itself has inherent issues that people (especially potential NICU parents) should be aware of. No…