Leo Clement

Half a year in which we have lived through a lifetime of sorrow, pain, joy and love. Leo will be 6 months this coming week. Every month, every week, every day is a miracle. He is our miracle and will be forever. Below you will find a video of these months, a glimpse into the past, and I think you will agree with me, that God's touch and mercy is clearly visible. A warning; some of the pictures are hard to look at, but they are the truth, and serve to highlight even more how wondrous life can be. That in the middle of horror, one can find beauty and grace. Our family thanks you, our dear friends and readers, for taking part in our journey and we hope that it will be a long one! Happy half year, our sweetest baby, and many more. (Click on the link below, and then on the icon of the film to watch) 6 Months Of Leo

Recently our thoughts and feelings have been thrown for another loop. I think that is becoming more of the norm, then the exception! The following paragraph highlights something that has come up in recent conversations with friends. Something about trying to be in each others shoes, or trying to understand what our situation feels like. Well here is the only way I know how to share that, and I am going to use the events from the past week as an example: First let me tell you about hope. This is a hope that isn't recommend for the faint of heart. If you are in any way suffering from naive delusions of happily ever after, then this hope isn't for you. If you want a hope that is a clear distinction between very bad, and very good, then it's not for you. If you expect miracles from this hope, then it isn't for you. This is a hope that is so slight, so thin, so painful, it doesn't seem like a hope at all. It doesn't offer comfort, it doesn't offer answers. You ...

“See that you do not despise one of these little ones. For I tell you that in heaven their angels always see the face of my Father who is in heaven. (Matthew 18:10) An image of you, perhaps transcends reality. How I pictured you in my mind, before you were born. Your curled limbs, in perfection reflect beauty. Those things that are wrong, only make you unique. They said you would die, and yet you breathe, You grow, change, and live. When you laugh with us, it pleases me to tears. The way you watch your sister, so present in the moment. We are so proud of you, son, it hurts. You are ours for now, but His forever.

After four days of being on Keppra, it seems that we have a handle on the seizures! Day two he was still seizing so the neuros recommended doubling his dose. I played it safe and upped the dose to 1.ml instead of the 1.4ml. Yesterday he had his EEG. Of course it had to be during one of the biggest snowstorms of the year, and super early in the morning to boot. However, Leo handled having 25 plugs stuck on his head with good grace and we got out the hospital in a decent amount of time. We haven't gotten the full results of that yet (not like we care anymore) but his PCP briefly dropped me a message saying there was good news from his EEG. So either he showed no propensity for seizures, or if so, they are ones that can be controlled. That's my guess anyway to what the "good news" entail. My theory, based on mom instict, is that he is teething something fierce and that it's causing the low-grade fever and seizures. He has a very low seizure threshold, so even when h...