Skip to main content

For Our Son



















“See that you do not despise one of these little ones. For I tell you that in heaven their angels always see the face of my Father who is in heaven.
(Matthew 18:10)



An image of you, perhaps transcends reality.
How I pictured you in my mind, before you were born.
Your curled limbs, in perfection reflect beauty.
Those things that are wrong, only make you unique.

They said you would die, and yet you breathe,
You grow, change, and live.
When you laugh with us, it pleases me to tears.
The way you watch your sister, so present in the moment.

We are so proud of you, son, it hurts.
You are ours for now, but His forever.

Comments

  1. Anush, this is beautiful! This stunning fiery seraph cradling a baby brings cheerful thoughts. Special babies need special angels. Maybe that's why seraphim were created with six wings - they are multitasking, they have their wings full! ;-) And your hymn to life and your resistance to fear is powerful! Thank you!

    Love and special prayers to little Lion!

    ReplyDelete
  2. This is intensely beautiful, just as your experience with Leo is a more intense version of what all parents go through with their children. Thank you for these reminders of love, reality, blessings...

    Susan

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

The Heart Knows

Today during the physical therapist's visit, Leo was put through his paces. She had a whole list of things, 40 to be exact, of regular newborn motor reflexes and characteristics. Each one gets a check-mark (or not) and then a total score once she tallies up all the information that she observed. Although the final score for Leo really itself doesn't matter, the test was more to establish a baseline of development for Leo, and to find his strengths and weaknesses. Once this baseline is established, it will be easier to tell any progression and growth. Just since her last visit, she observed that Leo was doing a much better job of keeping his head in mid-line position. Before he would always keep it on one side or the other. She also determined during the exam that Leo definitely tracked her with his eyes and responded to sound. More specifically, to my voice. She had him on his tummy facing away from us, and she shook a rattle and made some noise to see if he would move his head...

Shunts Away!

Here is just a quick update for all those waiting and praying for our Leo, before we go collapse in bed for the night. Leo was prepped and ready for surgery early this morning, but they only took him around two in the afternoon. We were there with him for most of the day today, just waiting and biting our nails. The anesthesiologist, a very nice British guy, came up around lunch to talk to us about the risks etc in Leo's case. Apparently because of his tucked up little chin, the regular breathing tube could not be used without lots of maneuvering and fiber optic tools. The anesthesiologist decided to use another breathing aid that isn't normally used for babies; a little tube that only goes down into his larynx, and does not do much more then blow some air down. Most of the breathing support would have to come from Leo himself. Typically under anesthesia babies need help to breathe, so the anesthesia team takes over the breathing. However the side effect of that is the newborns...