Skip to main content

Tough Love

A quick update: Leo had his MRI this morning, and it all went well. We got to hold his hands and be there when they put him under with the anesthesia. Although it did take them four tries with the IV because of all his lovely baby chub. He enjoyed the long hour and half nap in the MRI machine (finally a nap without interruptions from screaming 4yr olds, slamming doors and dropped pans etc) and came out of it slightly groggy but still with his usual sweet smile. What a tough dude! He has had several seizures tonight, but they did mention that sometimes the drugs can lower the seizure threshold in kiddos for a little while. Hopefully tomorrow he will be back to 100% and no seizures. Although the helmet wearing gets more serious, (took a break from it today) with the hours getting longer. In five days we need to work up to the full 23 hrs.
I know everyone is very interested in the results of the scans, and I am assuming that we will get a phone call from his docs in the next couple of days. As usual, the techs are not allowed to say anything! So we need to wait until the docs get to it. (We will post more when we get the info.) We are so glad that we where able to finally get this done, for better or for worse, and hopefully this will be the last procedure for a while! Leo is always full of surprises, but I certainly prefer the non-medical ones. While we were sitting in the hospital cafe, our lunch sharing the tabletop with the ward's buzzer, I realized that it will never get easier. Signing those forms, walking away from your baby when he is totally dead to the world, and then just waiting, and waiting, trying to stay occupied even though you can't help glancing at the buzzer every couple of seconds. Even though the MRI is not a big deal, not like his previous surgeries, it was still hard. It's terrible how inadequate you can feel in those situations. As a parent, you know exactly what to do for your child, how to make them happy, and how to keep them safe. But in these situations, you have to be step aside, you have disengage and let the professionals take over because in this instance, they are the ones with the knowledge. All we can do, is just keep vigil, pray, and trust. But gosh is it tough, every single time.








Comments

  1. Thank you so much for the update! Your entire family are such troopers. We love you all so much.

    ReplyDelete

Post a Comment

Popular posts from this blog

Lost In Summer

It has been a long time...maybe the longest since I have written to you all last. This blog has meant many different things to me over the past seven years, in fact, it has taken as many different manifestations as its subject matter, Leo the little lion! Not so little anymore, in a couple weeks he will be seven years old.  And so will this blog!  It is amazing to think back to the frightening beginning of it all, and to realize that never in a hundred years could I have pictured myself now, sitting and typing this post at my sunny kitchen table, in my own house, while the early morning sounds trickle in from the open porch door and mingle with the voices of my children in the other room. Not one child, as we all thought seven years ago, but two.  Seven years ago, Leo was not going to live to his first birthday. He was not going to be able to talk sweetly to his big sister, as I hear him doing right now. Though I'm sitting in the other room, I can picture them both clearly; his s…

For The NICU

So you guys know that September is the NICU (Neonatal Intensive Care Unit) awareness month right?  Yeah, I didn't know either.  Every month there is some disease or disorder that we should worry, promote, and be aware about...so after awhile all that awareness stuff gets tiring... But this is the first time I've heard of an awareness month for a place, rather than a physical condition. What's up with that? How come we need an awareness month for a section of the hospital? We have an awareness month for breast cancer, not the cancer ward itself...so why the NICU? I'm pretty sure there is a preemie dedicated month, and one for every other condition that may have put the infant in the NICU in the first place, so why the preferential treatment? After thinking about it for awhile, the only reason I could come up with for the need of this awareness of a place, is that the place itself has inherent issues that people (especially potential NICU parents) should be aware of. No…