Skip to main content

Wheezing Through The Smiles

So the little Leo man has finally succumbed to his first more major virus, mostly because of his sister's good sharing skills. She managed to go under my radar and share some snotty kisses with her little brother. Needless to say, the odds were not in his favor. We are on day 5 of major chest congestion, fever, and all that jazz. We brought him in today to get looked at on the visiting nurses recommendation. He was wheezing pretty heavily yesterday and today so they put the mask on him to see if the inhaled medicine would help ease his breathing. Other then making his eyes water and make him sleepy, it didn't seem to change his breathing much! However, I think he is finally turning the bend and tonight his breathing is much quieter.
I have to say, he is the most amazing baby ever! Even while obviously not feeling well, feverish, and struggling to breathe, he still tries to make us smile. This just seems unnatural to me! I am used to kids turning into miniature wolverines when they are sick, complete with unbreakable grips and howls. Leo just looks cuter and sweeter, even while cooing in a voice that could belong to a hard-core smoker. He is our joy. It is getting easier to put aside all our pre-conceived notions of what a perfect baby should be like, and to just take Leo for what he is. A pure soul; the sweetest, and gentlest spirit in the world.







 

Comments

  1. I'm sorry your little guy is sick, but thankful that he is holding up so well through it all. He is such a sweet little boy.

    ReplyDelete
  2. He is just incredible! Such a trooper!

    ReplyDelete
  3. I love that first picture. It is one of the sweetest ever. Our John is that way, too. He will grin at us right after projectile vomiting or having a coughing fit. We can't wait to see you guys, and we are still planning a trip out your way in May!!

    ReplyDelete
  4. Blessed are the pure in heart, for they shall see God.

    ReplyDelete

Post a Comment

Popular posts from this blog

Pharmaceutical Fallout

I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. He was seen by his neuro within the hour, and after some bullying and grilling from yours truly, the action plan was det…

Not Your Average Special

Leo. This kid. Honestly? Life with the lion can be quantified in two parts: into a simple 60/40 equation. The 40 being the happy normal parent feelings, and the 60 being sheer exhaustion, confusion, worry, and what-the-hell-is-it-now feelings.  All normal right? Just another day in parent land. Wrong. I have always been an advocate for down-playing the special neediness of special needs. Yeah, yeah we all think we are special in our own unique hardships, get over it. We all have crap in our lives to deal with. But I might be starting to change my outlook.  Just a bit. Case in point: Leo and consequently me and everyone else who lives with him, have now been dealing with daily seizures for well over a year. Ok it doesn't sound that bad, when you string the words together and type it out into a sentence; there are way more scary sentences out there like "your child has a terminal brain defect" sentence etc etc. That sounds way more scary than daily seizures. This I know f…

The Rhythm of Life

When I think of the word rhythm, what comes foremost to my mind is a picture of my grandpa's metronome. My grandpa, when he lived in Russia, was a fairly well known voice professor who dedicated his whole life to the perfection and instruction of the human voice. As long as the human in question was applying said voice to opera and only opera, that is. Opera, in my grandpa's mind, was the only music worth bothering with. All other music he condescendingly referred to as "the bebop" with a lot of Russian eye rolling and sighing. He taught me about rhythm by sticking his old wooden metronome on the edge of his piano, and commanded me to never take my eyes off it during the whole voice lesson. Since it was conveniently eye level to my ten year old self it was pretty easy to get completely mesmerized watching the little weighted metal stick swish side to side, side to side, side to side.  I'm thinking now, almost twenty years later, that it may have been part of gra…