Skip to main content

Cracks In The Logs

The New Year is blowing through the cracks in our cabin, and the wind smells of change. Of change and opportunity and purpose. We can almost taste it. 




The wind blew so strongly, quite spinning us all around, so that the direction that we found ourselves facing, was a completely fresh one. 



And the new view, is pretty exciting! 


 Although not all the changes are thrilling, when we think of Leo's upcoming cranial surgery, we feel overwhelmed and scared. The thought of our poor fellow's noggin going under the knife once again is daunting.



But the winds of change have caught us up, and we can only speed along with it. 




Knowing.....




Trusting.....




Believing....
(with our trusty sidekicks and dear friends in tow)



 That though the wind may uproot us, and shake us about, that it will also deposit us gently, right in that place where we need to be. 








Leo is doing grand, although he and and some others of us have been battling a respiratory virus for the past couple weeks, which in addition to the coughing and runny nose, also has the added perk of losing your voice. At least it's been quieter around here. But that's the only thing that's been quiet. Our new year has started with a bang when we completely, and spontaneously, jumped into a new housing direction for us in the next couple of months. Though we will be sad to say goodbye to this cabin where so much as happened to us, where we have lived every extreme imaginable, it's time. Time to let go of the trauma, time to live. Let's go wind!


(by the way, no results as yet from the EEG, and we meet with surgeons next week!)

Comments

  1. LisaJanuary 2, 2012 at 8:27 PM

    I love this post, the pictures...and the words! Exciting, daunting, and ever changing..as with the wind! Stay warm this week...keep drinking :-)
    Love to you all

    ReplyDelete
  2. elizabethJanuary 2, 2012 at 11:22 PM

    keep us posted; we hope with you!

    ReplyDelete
  3. AnonymousJanuary 4, 2012 at 12:26 PM

    we continue to place Leo into the loving arms of our Lord Jesus every morning, without fail.
    Claire

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...
34 comments
Read more

Putting The Lion Back Into The Wild

I'm actually home tonight while the 'boys" are at the PICU for what could be, maybe, possibly, our last night. It's almost hard to believe that we could go home. It's like those animals who have been in captivity who are finally let out almost don't know what to do, and often cower in fear and confusion in their cages. We would be cowering, but that sounds like it takes too much energy. We are completely exhausted after ten days of this shunt malfunction marathon.  Yesterday afternoon Leo had the hopefully final surgery to fix his shunt. The Neurosurgeon replaced all the tubing and tunneled a whole new channel for it as far away from his lungs as possible. During which he discovered that the connection between the tubing and the shunt valve was leaking and welling up CSF as he was examining it. Also his old tubing was inserted pretty high under his breastbone which often can jeopardize the integrity of the surrounding tissues; in other words, the plu...
8 comments
Read more

Kinda Like 'Nam.

First off, sorry about the disjointed nature of the posting from yesterday. I was updating via text messegaing from my phone and because the service is patchy in the hospital not only were the posts chopped up but they were frequently out of order. You have to be a sleuth to figure it out. On the other hand, I guess it was a direct reflection of what we were experiencing! Between getting little bits of info and there, we had no clue what was going on. This is what we have been able to piece together since yesterday. The surgery itself was a definite success, though there were a few surprises. One of which being that when they took out Leo's shunt of 8 months they discovered that it was not working. Huh??? He never showed any symptoms of shunt failure and brain compression, so what the heck? In between the sobering list of items now holding risks for our guy, the nuero surgeon dropped this little bombshell on us. Does that ...
18 comments
Read more