Skip to main content

Not Much Ado

Its been awhile since our last post, and I humbly apologize for that! I haven't been able to just get it together! I always feel like Leo's fans deserve something special, not just a boring post about the mundane. So I usually wait until something inspiring, or something special happens. But sometimes, the specialness just doesn't seem to come, or at least I'm not recognizing it. The page stays empty in front of me. Then, inevitably, something else comes up, like a kiddo, or work, or..etc. No excuses really, though in my defense, it's amazing that this blog is a fairly coherent diary of Leo's first two years. It's one of the few things I've been able to faithfully keep up, and it certainly is the most I've ever written since college. Who ever would have thought that I've thought up, with Justin's occasional help, two years worth of thoughts about one little boy?
As I'm sure you know, when we started this blog, in Leo's little nook in the NICU, it was as purely functional way of letting our friends and family know the latest news without endlessly having to repeat our selves, or posting on facebook, where our sad story just didn't seem to fit in with the endless statues updates about daily minutia and/or random thoughts and weird pictures of cats.
I'm sure we never even dreamed that it would develop into such an collection of memories and impressions. We certainly never dreamed that so many of you would take our little lion under your prayer wings and keep such a faithful watch over him. How did he ever get so lucky?!

They say a picture is worth a thousand words, and since I don't have the words today, here are some pictures from the past couple weeks that should make up for my literary inadequacies!


Sister Bear showing Brother Bear the online advent calendar, which, by the way is pretty savvy! (check it out! http://www.jacquielawson.com/ )

Bet you've never seen a paci worn like this before....


Rocking it out, lil Lion style...! (In case you wondered what we do when it's cold in VT)

The "fail" holiday photo, which I still like for its accurate depiction of family members.
Herding all these kids up a hill is harder then herding horses...Leo again,  is recognizable by his ridiculous paci.

Lil Lion 




Comments

  1. AnonymousDecember 12, 2012 at 8:07 PM

    Love all your pics. Lil Lion is looking so good! So very happy for all of you. Merry Christmas to your whole family and sending extra hugs to the little guy. Go Leo!

    ReplyDelete
  2. AnonymousDecember 13, 2012 at 5:11 PM

    How can you feel like you love someone you've never met? Thank you so much for sharing your family with the world, I'm always inspired by your words, and of course, by the strength, courage and joy of your little one. Special family you are. I feel blessed to know your family, even if it is through cyber space! :)
    Merry merry Christmas!
    Tina

    ReplyDelete
  3. BeckiDecember 14, 2012 at 7:33 AM

    I like to hear about Leo and your family no matter what is going on, even if it's nothing much. Sometimes "nothing much" is just great. And I agree, Leo looks wonderful!

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...
34 comments
Read more

Kinda Like 'Nam.

First off, sorry about the disjointed nature of the posting from yesterday. I was updating via text messegaing from my phone and because the service is patchy in the hospital not only were the posts chopped up but they were frequently out of order. You have to be a sleuth to figure it out. On the other hand, I guess it was a direct reflection of what we were experiencing! Between getting little bits of info and there, we had no clue what was going on. This is what we have been able to piece together since yesterday. The surgery itself was a definite success, though there were a few surprises. One of which being that when they took out Leo's shunt of 8 months they discovered that it was not working. Huh??? He never showed any symptoms of shunt failure and brain compression, so what the heck? In between the sobering list of items now holding risks for our guy, the nuero surgeon dropped this little bombshell on us. Does that ...
18 comments
Read more

Riddle Of Love

What do you call something that can't be defined, labeled, predicted, researched, or categorized? Perhaps you would call that something a riddle. But this riddle has no right answer. There is no cheat sheet on the back that can tell you what to expect. There is no teacher who has the right answer in her book, waiting until the right moment to divulge the eagerly awaited answer.  Neither is there a doctor, rich in knowledge and experience, who can make a sure diagnoses and heal a broken heart. Thus, perhaps you would change the word "riddle" to "mystery," as in one of those great "unsolved mysteries." Leo is surely on the top of that list. Yesterday we had a visit with one of the prominent neurologists at the hospital to look at Leo man's new MRI slides. I suppose that both Justin and I thought that somehow, he would be able to provide us with some clear answers as to our little guy's new diagnosis and prognosis. I think we should have known ...
16 comments
Read more