This afternoon, after much deliberation of the team, and some not very subtle urging from me, Leo got the fluid drained from the plural space around his poor squashed and collapsed lung. No joke here folks, they drained a quarter of a GALLON of fluid out! The running joke is that Leo doesn't do moderation. He makes the radiologists use words like "huge" or "profound" or "massive". Perhaps it's one of those "you had to be there" jokes, but it does seem like he has got some kind of a trend going on in making docs expand their usual diagnostic vocabulary. Anyway the procedure was a success and Leo's lung inflated back up to 50% almost immediately after the fluid pretty much exploded out. The fluid is now off being tested and lion boy is resting and breathing much better then before. And no wonder having so much fluid pushing all his bits off to left field like that! No answers as yet to cause of this, but we are hopeful that the labs will shed more light on the puzzle. Thanks as always for keeping us in your thoughts and prayers!
I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.
To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino.
I'll tell you why:
So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands.
Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse.
It's true, one does not mess about with allergic reactions.
He was seen by his neuro within the hour, and after some bullying and grilling from yours truly, the action plan was det…
not a day goes by in which Leo is NOT remembered in my prayers......in fact, I often start my prayers by giving thanks for the miracle of Leo. love, Claire
ReplyDeleteBeen thinking of Leo and praying that this gets sorted out soon. I'm so sorry it's happening right at the holidays. Lots of love to your family!
ReplyDeleteLove and prayers from Ellwood City, Pennsylvania. May the Eternal God Who was born as a little Child be with your little Leo, and all of you, at this holiest time. Leo is in our prayers, every day. Christ is Born!
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