Skip to main content

Home.


After about half a day of paper signing, talking with doctor after doctor, and making quite a collection of business cards, we were free to go. They did cut through a lot of bureaucracy, since in our case it's kinda redundant to make us watch the movie on SIDS and lying the baby flat etc. Plus they were forced to look the other way as Justin carried Leo out in his arms. (They have a policy that the baby needs to leave in a carseat.) Leo bent a whole lot of rules during his stay in the NICU. Nevertheless, I think the world of those doctors and nurses who really tried hard to help us in every way, and were sincerely compassionate and caring to us. Leo's PCP is even making a house call to us next week! Just like in the old days. Anyway, Leo loved his carbed, and Nika loved having company in the backseat. We overheard her telling him, "Don't worry little brother, I'm right beside you."
Our little family is complete now, and it feels very right to have him home. Though the long-term prognosis for Leo is very poor, he is were he belongs and as long as he is with us, we will treat every day as a gift. Dear sweet baby, we can't wait to show you how beautiful the world can be.

Comments

  1. LisaSeptember 3, 2010 at 10:52 PM

    Oh I'm so glad you could go home baby Leo! Your Mom & Dad and big sister, Nika, are very special people. Family is complete and, oh, how they are so glad you are part of their lives. Gos Bless You All, and know we are all here to help with love, support and prayers.

    ReplyDelete
  2. LeeAnnSeptember 4, 2010 at 12:52 AM

    You have already been showing Leo how beautiful the world is! Your love is incredible, and he has been showered with it all along. Your Faith is amazing, and he has been a part of that as well. I am so happy for you, I love you guys so much, and I continue to pray for you!

    ReplyDelete
  3. NickiSeptember 4, 2010 at 9:13 AM

    So glad you are home! We are thinking of you and praying for you daily!

    ReplyDelete
  4. melaniejean_34September 4, 2010 at 1:39 PM

    Praying for you multiple times a day. May you enjoy each precious moment with Leo. He is in good hands with you and His heavenly father watching over. Tears of joy to see his precious little face and see that he is home.

    ReplyDelete
  5. LauraSeptember 4, 2010 at 11:39 PM

    What a joy to read this post! Welcome home Leo. May God continue to bless all of you each day, as you bless all of us who witness the beauty of your faith and courage. Such love abounds!

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...
34 comments
Read more

Pharmaceutical Fallout

"Back to the hospital?! You're joking right?!" I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. Day 1 Day 2 (rash got progressively ang...
2 comments
Read more

Leo Lessons Part 1.

It's almost like Justin and I are stuck in this super advanced parenting class where Leo is the teacher, and our life is the classroom. Before Leo we thought we had credit we could transfer in from our previous baby/kid class, but we have found out that our old credits aren't applicable. Now we are in the crash course like it or not, and failing isn't an option. So we try not to sweat bullets and handle each new assignment he gives us with optimism. On our good days anyway. On our bad days, at least we have the notes we kept from previous successes to console ourselves with. Sometimes it helps.
20 comments
Read more