Skip to main content

The latest

Spent a peaceful and quiet evening in Leo's quarters, just Anna and I.  It's been a little over two weeks since we found out what was happening with Leo.  I don't think we have shared a laugh together since that time, for obvious reasons, but tonight was a release.  We remembered this random FarSide cartoon where a pilot is fumbling for a switch that says "wings stay on" "wings fall off".  Remember that one?  It reminds us a bit of the irony involved with the design of a thing and how it should not be an option to self destruct.  I guess you had to be there, but even the doctor told us a little black humor is allowed.
We are all set to take Leo home with us tomorrow.  Lots to go over before he is discharged.  We will probably have a visiting nurse come every day to check on things.  Leo's doctor, who is genuinely a compassionate person, offered to keep in contact and even gave us his home number!  Rare for such a thing to happen especially in a hot-shot hospital like the Hitch, but he has taken to us.  Leo is such a rare case, it seems he has been a case study for the med students.  Anyway, he is getting very boyish looking.  We are proud of him and how far he has come.  We hope he continues to surprise us once he gets into the big bad world.  That as we know is not for the faint of heart.  But heart is certainly not something Leo lacks.  That is our consolation.   
Peace.
                   

Comments

  1. That is wonderful that Leo can finally come home, Lord willing. That is great you have such great medical care too. What an emotional two weeks it has been. Thanks for sharing it with us and your endless faith and love.
    Marcy

    ReplyDelete
  2. Wonderful, wonderful news! You can see his heart in his eyes, he doesn't have those amazing, intense eyes for nothing. I am so happy for you.

    ReplyDelete
  3. Praise God. So glad he gets to come home.

    ReplyDelete
  4. Dear guys, while you are adjusting to a new routine, if you need any help like going to the store, cooking meals, taking care of Nika, or doing some other errands, please let us know. We are standing by.

    ReplyDelete
  5. Wonderful news! We love the DuMoulin's and continue to pray all of you.

    Dn John Brantley

    ReplyDelete
  6. Filled with such joy! Love to you, dear DuMoulins

    ReplyDelete
  7. So glad you found something to laugh about. Thank you again for sharing Leo with us.

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

Kinda Like 'Nam.

First off, sorry about the disjointed nature of the posting from yesterday. I was updating via text messegaing from my phone and because the service is patchy in the hospital not only were the posts chopped up but they were frequently out of order. You have to be a sleuth to figure it out. On the other hand, I guess it was a direct reflection of what we were experiencing! Between getting little bits of info and there, we had no clue what was going on. This is what we have been able to piece together since yesterday. The surgery itself was a definite success, though there were a few surprises. One of which being that when they took out Leo's shunt of 8 months they discovered that it was not working. Huh??? He never showed any symptoms of shunt failure and brain compression, so what the heck? In between the sobering list of items now holding risks for our guy, the nuero surgeon dropped this little bombshell on us. Does that ...

Leo Lessons Part 1.

It's almost like Justin and I are stuck in this super advanced parenting class where Leo is the teacher, and our life is the classroom. Before Leo we thought we had credit we could transfer in from our previous baby/kid class, but we have found out that our old credits aren't applicable. Now we are in the crash course like it or not, and failing isn't an option. So we try not to sweat bullets and handle each new assignment he gives us with optimism. On our good days anyway. On our bad days, at least we have the notes we kept from previous successes to console ourselves with. Sometimes it helps.