Skip to main content

Post Op.

This is a quick update on the shunt surgery.  Since it has gone in Leo's eyes have cleared up tremendously.  He has beautiful stone-cut blues like his mother.  The tightness in his face has gone down now that the pressure is off.  We think he is looking a lot like his sister did as an infant, only with a very funky head.  Today I trod new territory rigging up his "car-bed" for the likely occasion that he will come home with us towards the end of the week.  Car-beds are awkward things and the hospital rarely uses them, but they just happen to have one in storage.  Thank God.  If they didn't have one an ambulance ride home was our second choice!  We are learning more about hospital policy discharge procedures and all that.  Leo is looking more and more boyish and cute and fascinating.  But then again most parents think their kids are baby models.  He has picked up his eating now 48 hours after the surgery, but he still takes much less than a normal infant.  Nothing to do now but watch, feed, and even drive him around!  I never thought this day would come.  Friday it is...

Comments

  1. I thought he looked beautiful since I saw the picture at the top of the blog page. I love the post-op pic, too! His gaze has something wise in it.

    ReplyDelete
  2. I love his eyes. They're so inquisitive!

    ReplyDelete
  3. Jacob and I think he is really adorable. He does look a lot like Nika, and in his post-op pic, he looks a lot more comfortable. Love you all!

    ReplyDelete
  4. I'm so happy the pressure has been relieved...Praise the Lord! Our prayers continue as Leo continues to recover from his surgery. He is so beautiful. Hope to see you all soon.

    ReplyDelete
  5. "With God ALL things are possible!" So amazing!

    ReplyDelete
  6. God is Love. We still want to come visit you soon! Thank you for including us all in your journey. Love, the Yates

    ReplyDelete
  7. oh he is sooooo cute!! WElcome to our hydran group. My son Noah has hydran - you can see our blog at www.lisajking.blogspot.com

    ReplyDelete

Post a Comment

Popular posts from this blog

With Mixed Feelings

So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...

Pharmaceutical Fallout

"Back to the hospital?! You're joking right?!" I'm sure you guys are wondering what's been up with the Lion this past week after our worrisome VEEG adventure.  To tell you the truth, I feel like I've been taking shots of Leo's drugs and consequently feel dull and numb and just plain depressed. That is now of course, two days ago I was running high on adrenalin and resembled a charging rhino. I'll tell you why: So after being put on his new drug, Trileptal, Leo definitely started having a cessation of seizure activity, unfortunately however, he also started having severe headaches, photophobia, inconsolable crying and then in the last couple of days, a rash on his thighs, face, and hands. Just as an FYI the word "rash" is a magic word that will open the doors of the medical castle faster and slicker than a trojan horse. It's true, one does not mess about with allergic reactions. Day 1 Day 2 (rash got progressively ang...

Leo Lessons Part 1.

It's almost like Justin and I are stuck in this super advanced parenting class where Leo is the teacher, and our life is the classroom. Before Leo we thought we had credit we could transfer in from our previous baby/kid class, but we have found out that our old credits aren't applicable. Now we are in the crash course like it or not, and failing isn't an option. So we try not to sweat bullets and handle each new assignment he gives us with optimism. On our good days anyway. On our bad days, at least we have the notes we kept from previous successes to console ourselves with. Sometimes it helps.