This is a quick update on the shunt surgery. Since it has gone in Leo's eyes have cleared up tremendously. He has beautiful stone-cut blues like his mother. The tightness in his face has gone down now that the pressure is off. We think he is looking a lot like his sister did as an infant, only with a very funky head. Today I trod new territory rigging up his "car-bed" for the likely occasion that he will come home with us towards the end of the week. Car-beds are awkward things and the hospital rarely uses them, but they just happen to have one in storage. Thank God. If they didn't have one an ambulance ride home was our second choice! We are learning more about hospital policy discharge procedures and all that. Leo is looking more and more boyish and cute and fascinating. But then again most parents think their kids are baby models. He has picked up his eating now 48 hours after the surgery, but he still takes much less than a normal infant. Nothing to do now but watch, feed, and even drive him around! I never thought this day would come. Friday it is...
So for the past couple weeks my feed has been filled with the "back to school" and "end of summer" and "beginning of parental freedom from their annoying offspring" photos. It's ok, I totally get it. Another year, another back to school pic, another notch in the door jamb, and another chapter of growth and development with junior. Look at him go! Or not, as the case may be for many children. According to the CDC (Centers for Disease control and Prevention) one in six children has one...a developmental disability. A stamp of "not normal" across their foreheads. A number. A check mark in a box. My kid is one of them. I heard a brief segment on NPR that enticingly started out with the title of developmental delays on the rise, a 17% increase over the last twelve years. And though I turned up the volume the segment only talked about how it's probably only due to poverty, and it's only the upper classes that actually pursue diagnosis...
I thought he looked beautiful since I saw the picture at the top of the blog page. I love the post-op pic, too! His gaze has something wise in it.
ReplyDeleteI love his eyes. They're so inquisitive!
ReplyDeleteJacob and I think he is really adorable. He does look a lot like Nika, and in his post-op pic, he looks a lot more comfortable. Love you all!
ReplyDeleteWords fail. I am all amazement.
ReplyDeleteI'm so happy the pressure has been relieved...Praise the Lord! Our prayers continue as Leo continues to recover from his surgery. He is so beautiful. Hope to see you all soon.
ReplyDelete"With God ALL things are possible!" So amazing!
ReplyDeleteGod is Love. We still want to come visit you soon! Thank you for including us all in your journey. Love, the Yates
ReplyDeleteoh he is sooooo cute!! WElcome to our hydran group. My son Noah has hydran - you can see our blog at www.lisajking.blogspot.com
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